Explaining Chronic Illness to Children


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Getting diagnosed with fibromyalgia and other chronic conditions can make your regular daily activities of living very difficult. It can be extra difficult explaining these limitations our loved ones, and even more difficult to explain fibromyalgia to a child. Our kids are going to want to know, “What’s wrong with Mommy?” and “Why can’t daddy play catch with me?”

Well, the good news is, you’re not alone. There are lots of parents going through this exact thing, and there are lots of resources out there for parents with chronic illnesses like fibromyalgia. We took a look at books that explain a parent’s chronic illness to children. Some of the books are specifically for people with chronic conditions like fibromyalgia or chronic fatigue, while others are for more general illnesses.

Whichever you choose, your kids are sure to enjoy reading them, and they may help you explain to them what’s going on with you, and how they can help. And that’s a good thing.

1. Why Does Mommy Hurt? by Elizabeth M. Christy

 

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Why Does Mommy Hurt? is narrated by a little boy who is learning to understand and cope with his mom’s chronic illness. Neurologist Dr. Kent Smalley says, “This book helps open up communication about some of the most common problems for those with a chronically ill parent-child relationship, including fatigue, forgetfulness, and frustration.” Also, portions of the proceeds are donated to the National Fibromyalgia and Chronic Pain Association (NFMCPA).

2. Ravyn’s Doll by Melissa Swanson

 

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Melissa Swanson says she wrote Ravyn’s Doll after being diagnosed when her daughter was 9 years old. “I found myself always apologizing and explaining why I could not do things that I used to do. I work in a school district with elementary and middle school children. The kiddo’s (sic) have asked why I sometimes wear dark sunglasses, wear a tens unit, use ice packs/heating pads or move very slow and wince in pain. I find myself explaining not only to the students but to adults that I encounter.”

3. How Many Marbles do you Have? by Melinda Malott

 

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How Many Marbles do you Have? by Melinda Malott is another great book for explaining fibromyalgia to a child. She says, about writing the book, “I have a bachelor’s degree in nursing and a Master’s degree in community health education, but my formal education did not prepare me to explain something as complex as CFS and fibromyalgia to young children. I decided rather than try to explain something I couldn’t understand that it was best to try to help my children understand my limitations.”

4. Mommy Has to Stay in Bed by Annette Rivlin-Gutman

 

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Mommy Has To Stay In Bed is not specifically about fibromyalgia, but it can still be useful for explaining the limitations of a chronic illness to a child. The author, Annette Rivlin-Gutman was placed on bed rest during her 2nd pregnancy and was struggling to explain that to her 18 month-old daughter. So she wrote this book, because, “While on bed rest, […] she explained what was taking place to her daughter, but also recognized that it would have been helpful to have a related, illustrated and easy-to-understand children’s book.”

5. What Does Super Jonny Do When Mom Gets Sick? by Simone Colwill

 

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Another book that is not specifically about fibromyalgia, but is nonetheless good for explaining illness and hospitals to children. Simone Colwill wrote What Does Super Jonny Do When Mom Gets Sick? when she developed Chrone’s Disease and started spending lots of time in the hospital. If you find yourself visiting the hospital often, this book could be for you.

6. Mommy Can’t Dance by Katie Carone

 

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As anyone with a chronic illness like fibro will tell you, one of the toughest things to deal with is not being able to do things that you really used to enjoy doing. As Conscious Crafties writes, “It can be sad and confusing for both kids and moms when a mother is hurt or sick and can’t do all the things she used to. This simple and sweet book helps children understand limitations. It shares ideas on how kids can help, as well as activities a mom and child can still do together.”

 

The preceding article is from RedOrbit.com and posted here for sharing purposes only. For additional info, please visit their website.
Re-post from October 2017

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#CoverReveal “A Bakery at the Little Duck Pond Cafe” by Rosie Green

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Ellie’s dreams of opening a bakery in Sunnybrook are finally coming true and best friends Fen and Jaz are happily rallying round, helping her to plan a fabulous grand opening day. Everything in their garden seems to be rosy – until the arrival of a newcomer brings chaos to the village and tests relationships to the limit. Can the bakery succeed in the face of such upheaval? And more importantly, can firm friendships survive?

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Rosie GreenAuthor Bio

Rosie Green has been scribbling stories ever since she was little. Back then they were rip-roaring adventure tales with a young heroine in perilous danger of falling off a cliff or being tied up by ‘the baddies’. Thankfully, Rosie has moved on somewhat, and now much prefers to write romantic comedies that melt your heart and make you smile, with really not much perilous danger involved at all, unless you count the heroine losing her heart in love.

​Rosie’s brand new series of novellas is centred on life in a village café. The first two stories in the series are: Spring at The Little Duck Pond Cafe and Summer at The Little Duck Pond Café.

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Song Lyric Sunday | “For You I Will” – Monica

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Song Lyric Sunday was created by Helen Vahdati from This Thing Called Life One Word at a Time and author Jim Adams from A Unique Title For Me is our current guest host. For complete rules or to join in the fun, click here.

This week’s theme is  “Ocean/Sea/Lake/Bay.

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Included on the soundtrack to the film Space Jam (1996), For You I Will by Monica was later  released as a single and became a top 10 hit on the US Billboard Hot 100 as well as Billboards R&B chart.

The song’s lyrics involve the singer pledging love and devotion and promising to help an unnamed “you” overcome any difficulty, regardless of the magnitude, even crossing an ocean to do it.

FUN FACTS:

  • For You I Will was ranked #13 on the Top Hot 100 Hits of 1997 list.
  • It was certified platinum by the RIAA on July 2, 1997.
  • It was featured on the video game Karaoke Revolution Party.
  • The music video of For You I Will was directed by Francis Lawrence in a movie studio, in New York City. It inter-cuts scenes from Space Jam with scenes featuring Monica.

Enjoy!

See my Song Lyric Sunday selection for FeliciaDenise.com.

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Disclaimer: I have no copyrights to the song and/or video and/or hyperlinks to songs and/or videos and/or gifs above. No copyright infringement intended.

For You I Will

Compiled from Genius Lyrics, Google, Wikipedia, Songfacts.com, and YouTube.
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