Posts Tagged ChronicIllness

Fibromyalgia and the Burning Sensation

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It’s the fibromyalgia burning sensation: Do you ever feel like your bones are on fire? What about the top of your leg or your back, maybe even under the skin? Some fibromyalgia patients feel like lava is being pumped through their veins rather than blood. You might even have that burning sensation in your brain, which is interesting in itself since the brain has no pain receptors. Still others feel like their stomach, tendons, or ligaments are burning right inside their body. For many with fibromyalgia, the searing pain is so severe that they cry and scream in pain.

And if that wasn’t enough, there’s nothing to show for it! For example, when my skin feels like it’s on fire, it’s not even red. Does that happen to you? Does it make you angry? I mean, if I’m going to suffer I would really like a bruise, a mark, redness…. something as some sort of evidence at the very least. Because we all know that it’s really hard to get people to believe that something is wrong when they can’t see a single problem on your body.

What in the World is Going On?

According to medical experts, “Research suggests that the pain associated with fibromyalgia is caused by a “glitch” in the way the body processes pain. This glitch results in a hypersensitivity to stimuli that normally are not painful. According to the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), research has shown that people with fibromyalgia have reduced blood flow to parts of the brain that normally help the body deal with pain.”

The American Fibromyalgia Syndrome Association puts it perfectly: “Fibromyalgia pain has no boundaries.” They add at the “body-wide symptoms are greatly magnified by malfunctions in the way the nervous system processes pain.” This coincides with the previously mentioned research regarding a “glitch” in the system, so in this context it makes sense the body will sometimes register stimuli as a burning feeling.

The burning that fibromyalgia patients often experience is sometimes associated with allodynia, which is a painful sensation caused by touch and frequently associated with migraine headaches. However, many fibro patients do not have to experience being touched in order to feel the burn that seems to come from within and sometimes on the surface. So while allodynia may be the situation for some with fibromyalgia, it does not explain the burning sensation across the board. To be fair, however, there seems to be almost nothing that explains any fibromyalgia symptom across the board. Thus, the great mystery surrounding this strange affliction.

Can Anything Be Done About It?

Here are some examples of what fellow patients say works for them to ease the fibromyalgia  burning sensation:

  • Massage therapy – A typical feature of fibromyalgia is the inability to relax the muscles. Often our muscles are tense and we don’t even know it. This leads to a build-up of lactic acid which can also be a cause of the burning sensation, especially in the muscles. A highly skilled massage therapist (you may even consider a medical massage therapist) who understands fibromyalgia can work with you weekly or bi-weekly to release the acid. For some patients this reduces and even removes the burning sensation entirely.
  • Cortisone shots – Administered by a healthcare practitioner, this is a temporary relief and does not apply to all situations of burning sensations.
  • Gabapentin – Prescription medication used to treat pain caused by shingles.
  • Heat therapy – It sounds counter-intuitive but fibro patients experiencing a burning sensation often report that heat therapy options such as hot tubs and electric blankets provide a great deal of relief.
  • Supplements – Although the exact cause of the burning feeling is unknown, some patients appear to be nutritionally deficient, which can be a leading cause of many fibromyalgia symptoms. Look for a high-quality (preferably whole foods) vitamin in addition to a high dosage of Vitamin D and a steady dose of magnesium (due to our commercial agricultural practices, almost everyone in North America is magnesium deficient which causes a litany of symptoms both related and unrelated to fibromyalgia.)
  • Lidocaine patches – These actually fall into the category of local anesthetics. Even though there are versions of them available over-the-counter, for our purposes of relieving the burning sensations, you’ll want to get a prescription from your doctor. In fact, they are often used to relieve nerve pain after shingles.
  • Antihistamines – Benadryl and Zyrtec have been reported as effective for relieving the burning pain in fibromyalgia patients.
  • Decreasing stress – You’ve heard it a thousand times because it’s true. Finding ways to relieve stress and cope with stressors can do wonders for many fibromyalgia symptoms, including the strange burning.

 

 

The preceding article is from FibromyalgiaTreating.com and posted here for sharing purposes only. No copyright infringement is intended.
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10 of the Worst Things Said to People with Fibromyalgia

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1. People with fibromyalgia are just lazy

This is a killer, and the vast majority of our respondents mentioned being told they just “don’t want to do” stuff.

Some responses:

That I’m lazy I play up to my fibro and its all in your head and you can do more than you think you can!

Lazy, everybody hurts. Everyone has arthritis. You need to exercise, you need to walk. Blah blah blah.

My 17-year-old son broke my heart, he said I wasn’t sick I was lazy. Even though he hears me cry in my sleep in pain through two walls. I’m 53 and have to use a walker.

They have told me I was just lazy that I got up and moved around I would feel better or its all in my head if I would find something to keep my mind occupied I would be ok.

“Child protection services took my 5 children. On court records, the judge overruled me and my doctors and expert witness and said that it wasn’t a disease and I was just lazy.

Lazy, a waste of space, nothing wrong with me, so why would I want to leech off the government with wanting to get disability?

My ex husband told me I was a lazy sponging c$&t that I wasn’t contributing financially or around the house enough after much abuse I found out he was cheating and he left.

As you can see, this is very common and hurtful. In fact, people email Fibromyalgia Treating just spew this kind of hate. For example, this person got themselves so worked up they finished in all-caps:

you weak individuals are just looking for a quick fix, a simple cure, there isn’t one, very over it (sic) and care for yourself, lol no medication is going to help ANYONE with fibro you have to actually get off your ass to help yourself. Why not post TRUTH like that? Stop peddling trash. YOU ARE MISLEADING. I UNFOLLOWED YOUR TRASHY BULLSHIT PAGE AND I’LL KEEP REPORTING THOSE POSTS AS MISLEADING. HAVE NICE DAY. (sic)

We did have a nice day, and banned this person, too. But this person’s comment touches on our next type of hateful comment.

2. Fibromyalgia doesn’t exist

A classic that everyone’s heard, and it’s so hard because that maybe we should have made it the number one hateful statement because it’s the basis of all stigma against people with fibromyalgia.

I saw a doctor for a different medical condition. Once he saw Fibromyalgia listed on my medical chart he made a point to tell me “I don’t believe Fibromyalgia is a real thing. The doctors that do these days should have their license reviewed. It simply does not exist. What meds are you taking for it?

It’s an awful disease. I put my brave face on 24/7. No one can see our pain and suffering, so they question if it’s real or we’re just attention seeking. It’s much easier to pretend I’m ok, than it is to explain why I’m not.

3. It’s all in your head

This is closely related to the “doesn’t exist,” but it’s a much more explicit way to gaslight fibro sufferers.

That i’m lazy i play up to my fibro and its all in your head and you can do more than you think you can! And people have said i don’t want to hear it and we all have problems. They should step in my shoes for a day !!

They’ll say things like “you ain’t sick it’s all in your head” or “it doesn’t look like you’re in pain” makes your heart ache with tears that nobody will ever understand you.

They have told me i was just lazy that i got up and moved around i would feel better or its all in my head if i would find something to keep my mind occupied i would be ok.

As you can see, people are cruel and they like to use more than one category of hateful comment.

4. You Don’t Look Sick

Since fibromyalgia is an invisible illness, people who have it often don’t “look” sick, whatever that means. It’s also one of the most frustrating things a fibro warrior can her.

You don’t look sick. Look at you, you’re a runner. No way it’s that bad. Suck it up…. I’ve lost 2 very good paying jobs because of my faked illness.

I went to a concert at a stadium to be told I don’t look disabled and that fibromyalgia is just a figment of my imagination to scam the tax payers, needless to say we left the concert and headed straight home, wrote a letter of complaint but never even received an acknowledgement from them.

This women came to the car and said you can’t park There? On showing her my disability disk she said neither of you look disabled and it was disgusting that we were able to have a car???

5. God is punishing you for your sins

These people take victim-blaming to the next level by making illness a judgment on a person’s moral character. It’s shameful.

My uncle, who is a preacher, told me I was being punished by God for all of the wild things I have done & my family wonders why I don’t believe.

The rudest thing I have been told is GOD is punishing me for my sins. I know a lot of good Christians that died of cancer…I don’t think they were punished either. How dare they say this to me?

6. You’re just trying to get drugs

This is also a sad side-effect of the opioid crisis in the United States. We assume anyone in pain is just trying to get pills.

I’m lazy, good for nothing, will do nothing with my life, I need to do more, im a pill popper (I have a hard time taking meds unless I have too) and my favourite is I’m faking everything!

I’m not sure but to day I was left feeling like a addict over Tylenol. I am 54 years old when do you stop defending yourself. It made me cry.

I work with my mom and I was having an awful pain day. Around lunch time I had finally had it and I couldn’t hold back the tears. I was crying and crying as she spent 10 minutes telling me to suck it up and go back to work. I told her I needed to go home and take my meds to which she said ‘I think you’re just addicted to your meds.’

I was called a drug addict at one point because I was on so many medications. I felt like I might as well have been shooting up with the way people looked at me.”

I’ve had a receptionist look at my file and count my meds telling me I should still have plenty left, would never greet me, and I finally told my Dr after months and he got so upset with her and told me to tell him those things straight away, she has no right to be doing that. He sorted her out and also the pharmacist that would comment on my meds and how much I’m taking, without knowing my many medical issues.

7. You just need to exercise and lose some weight

This is similar to the “You’re lazy” and “it’s all in your head” with the added bonus of weight-shaming. It’s despicable. Here’s what our readers shared:

I have had to deal with uneducated Dr.s who were insensitive however , saying things like, Well, if you would lose some weight and get out and exercise you would be ok and this condition isn’t really a condition!

Just exercise and lose some weight and you’ll feel better. Or you sound happy to have that diagnosis, are you just looking for excuses.

“Well maybe if you lost weight and exercised you’d feel better.. THANKS SIS.. love you too.. maybe if she knew that the majority of the over 20 pills I take daily cause weight gain and bloating.”

Eye rolling while telling me ‘oh I don’t believe in all that crap! If you just exercise and diet you will start feeling better. Lose some weight and you’ll feel better. I would be in pain too if I just laid around all day.’

 

Lose weight, you are too big, that’s why you are in pain, you carry too much weight on your body.’ ‘You need to move around and exercise.’ I’ve been told this many times.’

Family member told me to just suck it up. You don’t need your Lyrica . You don’t look sick you’re just over weight…… U dont go out enough….. It’s all in your head……

8. You just want attention

People love to break out their arm-chair psychiatry degrees for this one. Munchhausen Syndrome is a real thing, but so is fibromyalgia. People are so rude.

‘Attention seeking’
‘It’s in your head’
‘It can’t be that bad’
‘Stop being lazy’
‘You need to go out and exercise more’
‘I did this with that and that’s worse’
‘Are you sure you’re not putting on?’
‘You’re always sick’

Was in hospital with the worst pain flare up, had so many tests and they all came back normal!….so the dr said to my dad does your daughter like being in hospital??…must of thought the blue curtain around my bed was soundproof.

You just want attention. There’s nothing wrong with you. You’re a hypochondriac. You just need some exercise and to lose weight. These are just some of the things I hear!

9. That’s all you talk about

This is a big one. People are afraid to talk because they’re met with eye-rolls or worse. Here’s a tip: If you don’t want to know how someone is doing, don’t ask.

I can’t talk about how I feel….I always get the same comment…you always say your not feeling well…like it’s something I’m making up.Each day is different and can be a struggle.. It’s hard when people around you don’t understand how your feeling and don’t want to hear it and don’t really care.

10. Oh yeah, that sucks, but it’s not as bad as this

There are some people who can’t just empathize. They have to outdo your pain by telling you how bad they’re hurting.

A friend of a (friend), said, “O I have that too, but that’s nothing compared to ” and that’s where they say their condition is worse than mine.

 

The preceding article is from FibromyalgiaTreating.com and posted here for sharing purposes only. No copyright infringement is intended.

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Can a Nerve Block Help Fibromyalgia?

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The technology that has started to go around in the world of medicine really is interesting. As time goes on, it’s hard to believe how much help we can get from all of the different advancements that have occurred in recent years.

One such advancement is known as nerve blocks, and they have been known to help with a number of different painful diseases and disorders, including fibromyalgia.

What Are Nerve Blocks and How Do They Work?

Nerve blocks are similar to other types of injections that help to reduce the amount of pain and stress that your body goes through. If you’ve ever heard of cortisone shots, they basically end up working in the same exact way.

What they do is that they “block” the nerves that you are feeling pain in. The injection is put into the area where the pain is being felt, and because of that, you get immediate relief from whatever pain you may be dealing with in that location.

Even though we’re talking about fibromyalgia here, there are lots of reasons that nerve blocks can be used. The most common reason that it is used is because of childbirth. If you’ve ever heard of an epidural, then you’ve heard of a nerve block.

The epidural blocks the nerves that cause a woman to feel pain in their reproductive organs – in some women, it ends up helping so much that they don’t feel any pain at all as a result of their labor. It’s actually quite amazing, since many women say that childbirth is one of the most painful things to go through – a couple of little shots can make it so it doesn’t hurt anymore!

The procedure is relatively simple. An anesthesiologist will help you through the procedure in a safe way.  They will give you the nerve blocker through an injection. Then, as the injection is going into your nerves, you will get to sit and relax while it’s going on. It takes anywhere from a half hour to an hour, and it could be any number of different things, depending on exactly what you need to do.

What Do Nerve Blocks Do to Assist with Fibromyalgia Symptoms?

As stated above, we’re focusing on fibromyalgia here. What do nerve blocks do in order to help with the reduction of pain that happens with fibromyalgia? They’re actually quite an important tool, and many people find relief when they use it as part of their fibromyalgia treatment plan.

We’ve discussed in other articles that the main area that is affected by fibromyalgia is the nervous system. The nervous system is overreacting to pretty much everything that is going on in the body, even if it’s not something that would normally cause a person to have pain. This over sensitivity can cause a number of different problems, including the pain that you are fighting off on a daily basis if you have the disorder.

So, logically, the nerve blocks make sure that the nerves are not firing off as they usually would, thus making it so that you aren’t feeling as much pain in those situations as you would otherwise. That being said, people who use this method will end up finding a lot of relief rather quickly, which is something that is rare for those who are dealing with fibromyalgia pain and other related symptoms.

Of course, that’s not the only thing that nerve blockers do. Because you aren’t dealing with as much pain, there are other symptoms that you may have noticed that have been reduced as well. Here are some of the issues that may be alleviated by nerve blocks and similar procedures.

– Increased flexibility and range of motion. If you are feeling sore, then chances are that you’re also feeling as if you are unable to move around very easily. When you get relief from that pain, you will notice that it’s a lot easier for you to move around and do everything that you did before the pain became a real problem in your life.

– If you are worried about having the pain flare up again, you can have the procedure done again. Over time, this will make it so that your nerves are not as sensitive as they once were, thus reducing the symptoms that you feel and making it so that you are better able to cope with any pain that you may be experiencing as a result. And if a treatment that helps to reduce the pain now can also help prevent further pain, you will realize that it’s definitely worth any investment that you put into it.

– Sometimes, nerve blocks can end up being a part of a physical therapy routine. Why is that? Because it makes it easier for you to go through the motions and to do all of the different things that need to happen during your physical therapy treatment. It’s usually done by an anesthesiologist, but your physical therapist will let you know ahead of time if you will be using it in between all of the procedures that you’re going to be doing as well.

– If you have any other disorders that are related to your fibromyalgia, including digestive issues, joint motion, vulvodynia, or any other pain related issues, you can find a lot of relief from those as well.

Nerve blocks are becoming a more popular option among doctors who treat patients with fibromyalgia symptoms. The pain can get really intense at times, so having a way that you can help to relieve that pain can be a huge deal, and it can end up solving a lot of other problems that you may be having as well. If you want to consider nerve blocks as part of your pain management, have a discussion with your doctor about it. They’ll be able to let you know if it’s something that will help you or if they want to explore other avenues of pain relief first.

Further reading:

Pain Management and Nerve Blocks: http://www.webmd.com/pain-management/guide/nerve-blocks

Nerve Blocks: http://www.fibromyalgia-symptoms.org/fibromyalgia_nerve_blocks.html

 

The preceding article is from FibromyalgiaTreating.com and posted here for sharing purposes only. No copyright infringement is intended.

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Fibromyalgia & IV Ketamine Infusion Therapy

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Anyone with fibromyalgia knows that there are hundreds of treatments that address the varied symptoms of fibro. It is because there are so many different ways that the disorder manifests itself, with so many different symptoms. Addressing each symptom can lead to a plethora of treatments. There is a newer treatment that seems to help several fibro symptoms, as well as addressing the causes of the disorder. This treatment is intravenous (IV) ketamine infusion therapy. Here is a closer look at how IV ketamine infusion works, and what is promising about using it to treat fibromyalgia.

Ketamine has been used in medicine for around fifty years now. The drug is often used as an anesthetic for surgery, because at that dose it causes a person to become unconscious and blocks the body’s ability to feel pain. This happens because the drug blocks the nerve receptors that transfer pain signals. The same substance has also been used to help psychiatric issues, including depression, which many fibro patients deal with.

IV ketamine infusion therapy helps to treat fibromyalgia by using the same neurological blocking properties that make it so useful to anesthesiologists. The IV ketamine infusion uses a far lower dose, and it is injected over a long period of time. Studies show that, when applied in this way, patients can have significant relief of pain symptoms for up to 3 months. The process is repeated several times in a few days or weeks. The end result is that the nervous system gets a pain response reboot. This process must be repeated to maintain the same level of relief. IV ketamine infusion therapy is generally reserved for patients that have been resistant to all other forms of treatment, and that suffer severe neurological pain. Many who suffer with fibromyalgia definitely meet that standard. To get ketamine treatments for your fibro symptoms, you need to talk to your doctor. If the doctor thinks that it would be beneficial for your case, then he/she will give you a referral to a clinic that performs the procedure.

The IV ketamine infusion process is relaxing. When undergoing the infusion you basically go into a chemically induced sleep for several hours. Certain motor functions are still left intact with this medicine, so if you have to use the restroom in the middle of the treatment you may wake up. For anyone who suffers from lack of restful sleep due to their fibro, the idea of a chemically induced slumber does not sound too bad.

Ketamine also agitates the receptors that regulate glutamate (a mood modulator), that has a role in depression. Because of this, it provides quick results as an antidepressant. Many fibro patients suffer from depression. The combined ability of ketamine to treat both depression and chronic neurological pain make it a great option for treatment of fibromyalgia.

 

 

The preceding article is from FibromyalgiaTreating.com and posted here for sharing purposes only. No copyright infringement is intended.

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What’s the Worst Case of Fibromyalgia?

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Have you ever wondered what the absolute worst case of fibromyalgia would be? After all, it’s a disease that affects everyone differently. And it makes sense that some people are affected by it more severely than others.

So what would be the worst case of fibromyalgia? How severely could it affect your life? And what could you do to treat it?

What Is Fibromyalgia?

Fibromyalgia is a disease that is not well understood. Essentially, it creates a general feeling of pain and fatigue around your body. There are a number of possible explanations for what causes fibromyalgia, but no one is sure what the right one is.

Some doctors believe that fibromyalgia is an autoimmune disease. That means that the body’s immune system begins to attack the healthy cells which make them inflamed and tender and causes aching in certain points around your body.

While no one knows exactly what the cause of fibromyalgia is, it’s a debilitating illness that affects people in a lot of different ways.

What Does It Do To Your Body?

Fibromyalgia causes a number of very different symptoms. And it varies so much that no two people have the exact same reaction to fibromyalgia. However, the most common system, and one that all fibromyalgia sufferers have, is chronic pain.

The pain is located along 18 specific points of the body. These are usually in your joints on both sides of the body and the level of pain can be different for different people. The level of pain can also change throughout the day.

And another common symptom for people with fibromyalgia is fatigue. Fibromyalgia sufferers often find that they can’t sleep very well, and when they do, they don’t wake up feeling refreshed the next day. As a result, people with fibromyalgia end up feeling something that is usually called a “fibro-fog.”

Fibro-fog is the name for a sort of mental cloudiness that comes with fibromyalgia. It usually presents as short-term memory loss, or trouble focusing on tasks.

Finally, fibromyalgia can cause some slightly more unusual symptoms. People with fibromyalgia often have irritable bowel syndrome, and gastrointestinal problems are very common among people who have fibromyalgia. And there are other conditions like constant itching which sometimes affect fibromyalgia sufferers.

What’s The Worst Case Of Fibromyalgia?

So if you’ve been diagnosed, you’re probably wondering how bad your fibromyalgia might actually get (what the worst case of fibromyalgia might be, basically).

Well, the good news is that your fibromyalgia won’t kill you. But fibromyalgia can still severely limit your quality of life.

Fibromyalgia affects many people by causing them to feel a constant feeling of pain and fatigue. So for people who have fibromyalgia, daily life can get very difficult.And the stories of people who have suffered from the illness for decades are heartbreaking.

Generally, fibromyalgia begins in its early stages with some warning signs. These are things like chronic fatigue and mysterious pain in eighteen points around the body. This pain is what causes most fibromyalgia patients to go to the doctor for a diagnosis. Though, if you have fibromyalgia, you probably already know how that goes.

Fibromyalgia then progresses into the chronic stage, where the pain and fatigue are constant. This is what most fibromyalgia patients live with every day. And though there are treatments, not all are effective. And everyone’s fibromyalgia seems to respond differently to different drugs.

Even the most up to date and cutting edge treatments might be completely ineffective for a lot of people. And this kind of treatment-resistant condition is the worst case of fibromyalgia since it is unresponsive to treatment and can often seem to get worse.

This is a tricky subject to discuss with any certainty, however. While most doctors will say that fibromyalgia isn’t a progressive disease for most people, some sufferers definitely report that their disease gets worse over time.

Can Fibromyalgia Make You Disabled?

So if you’ve just been diagnosed with fibromyalgia, there’s a chance that your pain and fatigue levels might begin to plateau and stay roughly where they are, though some days will be worse than others.

But in the worst case of fibromyalgia, the disease will get more painful and debilitating over time.

For people whose situation is the worst case of fibromyalgia, they will likely suffer their entire lives with constant, and unmanageable pain. This leads to serious problems in their daily lives.

Often, they lose their jobs due to the fact that they are effectively disabled. The constant pain and fatigue and the mental cloudiness, or fibro fog, makes working impossible.

And for people with extremely severe fibromyalgia, even getting out of bed is close to impossible. They require heavy doses of painkillers to even walk. And it takes them heavy doses of sleeping medication to get anything close to a full night’s sleep.

For those people who have the worst case of fibromyalgia, every day is a physical struggle. But it can be an emotionally struggle as well.

Can The Worst Case Of Fibromyalgia Affect Your Relationships?

Having severe fibromyalgia makes it difficult to maintain relationships with friends and family. People who used to enjoy your company sometimes drift away because your chronic pain and lack of mobility become tough for them to deal with. While that isn’t even remotely fair, it’s often how people are.

So in the worst case of fibromyalgia, expect to lose some of the friends you had who aren’t really friends. But the good side is that you will see who truly cares about you because they will stick around.

In addition, dealing with such a severely limited quality of life is extremely difficult emotionally. The constant pain can make it feel like life isn’t worth living. And suicide is tragically common among people with severe fibromyalgia.

It’s important to get help if you feel like you might be considering taking your own life. Suicide is never a good solution, and the saying that “it doesn’t end the pain, it only spreads it to the people who care about you,” is very true.

Fibromyalgia is a horrific disease to live with. And it takes a special kind of courage to endure the worst case of fibromyalgia.

 

 

The preceding article is from FibromyalgiaTreating.com and posted here for sharing purposes only. No copyright infringement is intended.

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10 of the Worst Things Said to People with Fibromyalgia

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1. People with fibromyalgia are just lazy

This is a killer, and the vast majority of our respondents mentioned being told they just “don’t want to do” stuff.

Some responses:

That i’m lazy i play up to my fibro and its all in your head and you can do more than you think you can!

Lazy, everybody hurts. Everyone has arthritis. You need to exercise, you need to walk. Blah blah blah.

My 17-year-old son broke my heart, he said I wasn’t sick I was lazy. Even though he hears me cry in my sleep in pain threw two walls. I’m 53 and have to use a walker.

They have told me I was just lazy that I got up and moved around I would feel better or its all in my head if I would find something to keep my mind occupied I would be ok.

“Child protection services took my 5 children. On court records, the judge overruled me and my doctors and expert witness and said that it wasn’t a disease and I was just lazy.

Lazy, a waste of space, nothing wrong with me, so why would I want to leech off the government with wanting to get disability?

My ex husband told me I was a lazy sponging c$&t that I wasn’t contributing financially or around the house enough after much abuse I found out he was cheating and he left.

As you can see, this is very common and hurtful. In fact, people email Fibromyalgia Treating just spew this kind of hate. For example, this person got themselves so worked up they finished in all-caps:

you weak individuals are just looking for a quick fix, a simple cure, there isn’t one, very over it (sic) and care for yourself, lol no medication is going to help ANYONE with fibro you have to actually get off your ass to help yourself. Why not post TRUTH like that? Stop peddling trash. YOU ARE MISLEADING. I UNFOLLOWED YOUR TRASHY BULLSHIT PAGE AND I’LL KEEP REPORTING THOSE POSTS AS MISLEADING. HAVE NICE DAY. (sic)

We did have a nice day, and banned this person, too. But this person’s comment touches on our next type of hateful comment.

2. Fibromyalgia doesn’t exist

A classic that everyone’s heard, and it’s so hard because that maybe we should have made it the number one hateful statement because it’s the basis of all stigma against people with fibromyalgia.

I saw a doctor for a different medical condition. Once he saw Fibromyalgia listed on my medical chart he made a point to tell me “I don’t believe Fibromyalgia is a real thing. The doctors that do these days should have their license reviewed. It simply does not exist. What meds are you taking for it?

It’s an awful disease. I put my brave face on 24/7. No one can see our pain and suffering, so they question if it’s real or we’re just attention seeking. It’s much easier to pretend I’m ok, than it is to explain why I’m not.

3. It’s all in your head

This is closely related to the “doesn’t exist,” but it’s a much more explicit way to gaslight fibro sufferers.

That i’m lazy i play up to my fibro and its all in your head and you can do more than you think you can! And people have said i don’t want to hear it and we all have problems. They should step in my shoes for a day !!

They’ll say things like “you ain’t sick it’s all in your head” or “it doesn’t look like you’re in pain” makes your heart ache with tears that nobody will ever understand you.

They have told me i was just lazy that i got up and moved around i would feel better or its all in my head if i would find something to keep my mind occupied i would be ok.

As you can see, people are cruel and they like to use more than one category of hateful comment.

4. You Don’t Look Sick

Since fibromyalgia is an invisible illness, people who have it often don’t “look” sick, whatever that means. It’s also one of the most frustrating things a fibro warrior can her.

You don’t look sick. Look at you, you’re a runner. No way it’s that bad. Suck it up…. I’ve lost 2 very good paying jobs because of my faked illness.

I went to a concert at a stadium to be told I don’t look disabled and that fibromyalgia is just a figment of my imagination to scam the tax payers, needless to say we left the concert and headed straight home, wrote a letter of complaint but never even received an acknowledgement from them.

This women came to the car and said you can’t park There? On showing her my disability disk she said neither of you look disabled and it was disgusting that we were able to have a car???

5. God is punishing you for your sins

These people take victim-blaming to the next level by making illness a judgment on a person’s moral character. It’s shameful.

My uncle, who is a preacher, told me I was being punished by God for all of the wild things I have done & my family wonders why I don’t believe.

The rudest thing I have been told is GOD is punishing me for my sins. I know a lot of good Christians that died of cancer…I don’t think they were punished either. How dare they say this to me?

6. You’re just trying to get drugs

This is also a sad side-effect of the opioid crisis in the United States. We assume anyone in pain is just trying to get pills.

I’m lazy, good for nothing, will do nothing with my life, I need to do more, im a pill popper (I have a hard time taking meds unless I have too) and my favourite is I’m faking everything!

I’m not sure but to day I was left feeling like a addict over Tylenol. I am 54 years old when do you stop defending yourself. It made me cry.

I work with my mom and I was having an awful pain day. Around lunch time I had finally had it and I couldn’t hold back the tears. I was crying and crying as she spent 10 minutes telling me to suck it up and go back to work. I told her I needed to go home and take my meds to which she said ‘I think you’re just addicted to your meds.’

I was called a drug addict at one point because I was on so many medications. I felt like I might as well have been shooting up with the way people looked at me.”

I’ve had a receptionist look at my file and count my meds telling me I should still have plenty left, would never greet me, and I finally told my Dr after months and he got so upset with her and told me to tell him those things straight away, she has no right to be doing that. He sorted her out and also the pharmacist that would comment on my meds and how much I’m taking, without knowing my many medical issues.

7. You just need to exercise and lose some weight

This is similar to the “You’re lazy” and “it’s all in your head” with the added bonus of weight-shaming. It’s despicable. Here’s what our readers shared:

I have had to deal with uneducated Dr.s who were insensitive however , saying things like, Well, if you would lose some weight and get out and exercise you would be ok and this condition isn’t really a condition!

Just exercise and lose some weight and you’ll feel better. Or you sound happy to have that diagnosis, are you just looking for excuses.

“Well maybe if you lost weight and exercised you’d feel better.. THANKS SIS.. love you too.. maybe if she knew that the majority of the over 20 pills I take daily cause weight gain and bloating.”

Eye rolling while telling me ‘oh I don’t believe in all that crap! If you just exercise and diet you will start feeling better. Lose some weight and you’ll feel better. I would be in pain too if I just laid around all day.’

 

Lose weight, you are too big, that’s why you are in pain, you carry too much weight on your body.’ ‘You need to move around and exercise.’ I’ve been told this many times.’

Family member told me to just suck it up. You don’t need your Lyrica . You don’t look sick you’re just over weight…… U dont go out enough….. It’s all in your head……

8. You just want attention

People love to break out their arm-chair psychiatry degrees for this one. Munchausen Syndrome is a real thing, but so is fibromyalgia. People are so rude.

‘Attention seeking’
‘It’s in your head’
‘It can’t be that bad’
‘Stop being lazy’
‘You need to go out and exercise more’
‘I did this with that and that’s worse’
‘Are you sure you’re not putting on?’
‘You’re always sick’

Was in hospital with the worst pain flare up, had so many tests and they all came back normal!….so the dr said to my dad does your daughter like being in hospital??…must of thought the blue curtain around my bed was soundproof.

You just want attention. There’s nothing wrong with you. You’re a hypochondriac. You just need some exercise and to lose weight. These are just some of the things I hear!

9. That’s all you talk about

This is a big one. People are afraid to talk because they’re met with eye-rolls or worse. Here’s a tip: If you don’t want to know how someone is doing, don’t ask.

I can’t talk about how I feel….I always get the same comment…you always say your not feeling well…like it’s something I’m making up.Each day is different and can be a struggle.. It’s hard when people around you don’t understand how your feeling and don’t want to hear it and don’t really care.

10. Oh yeah, that sucks, but it’s not as bad as this

There are some people who can’t just empathize. They have to outdo your pain by telling you how bad they’re hurting.

A friend of a (friend), said, “O I have that too, but that’s nothing compared to ” and that’s where they say their condition is worse than mine.

 

The preceding article is from FibromyalgiaTreating.com and posted here for sharing purposes only. No copyright infringement is intended.

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Fibromyalgia and Mental Health

Fibro Cloud

Life can be a struggle for anyone. But when you have a chronic illness like fibromyalgia, it can sometimes seem unbearable. And often, managing the mental health aspect of a chronic illness can be just as important as the physical aspect.

After all, the mental health struggles that people with fibromyalgia endure can have tragic consequences. And while fibromyalgia itself can’t kill you, the mental toll it takes can. Suicide rates for people with fibromyalgia are far higher than average.

So clearly, taking charge of your mental well-being is important if you’re suffering from fibromyalgia. But how do you manage your mental health when you’re suffering from such a terrible disease?

Managing Mental Health When You Have Fibromyalgia

First, let’s admit that it’s totally understandable that people with fibro would feel depressed. Usually, we think of depression as something that people suffer from with no obvious cause. And that is often the case. Depression can be caused by many things, including an imbalance of chemicals in the brain that leads to long-term depression even when events in your life are generally going well.

And many people with fibromyalgia may have this kind of depression. But there’s also another form of depression that is likely common in people with fibromyalgia. The most familiar term for it is “situational depression.” Put simply, it’s a form of depression caused by a reaction to events in your life.

And when you consider what someone with fibromyalgia goes through on a daily basis, it would be surprising if they didn’t experience this kind of depression sometimes. They have a reason to be depressed when they’re in chronic pain.

The truth is, of course, that while there are ways to manage the symptoms of fibromyalgia, there’s no way to get rid of them completely. Instead, people with fibromyalgia have to find ways to maintain their mental health in spite of them.

It’s not an easy answer. And in an age where there seems to be a pill for just about anything, the idea that the medical community can’t cure you can be a hard thing to accept. But it’s something that everyone with fibromyalgia comes to understand early on.

However, one of the hardest parts of living with fibromyalgia is that sometimes people around you expect you to “get over it,” or they offer up some advice about how you can cure yourself with some bogus remedy. It sometimes seems like the one thing no one wants to accept is that the people in their lives with fibromyalgia are really suffering and that they can’t do much about it.

The first step to improving your mental health is to realize that it is ok to be depressed. It isn’t your fault, and you don’t have to hide how much you’re suffering from others to make their lives easier. If you’re in chronic pain, you’re going to be depressed about it sometimes. It’s a natural reaction to the situation you’re in. Don’t let anyone make you feel guilty about it, including yourself.

After all, people who don’t have fibromyalgia can’t truly understand what you’re going through. And if they were in your position, they would be going through the same emotions. They have no right to make you feel bad about the fact that you’re suffering.

At the same time, the people who manage fibromyalgia best are those who realize that, at a certain point, they need to take charge of their own health. There simply isn’t another way to do it. And the good news is that there are a number of things you can do to improve your mental health when you have fibromyalgia.

Tips For Improving Mental Health

There’s no cure for fibromyalgia yet. So you won’t be able to completely fix the things in your life that are making you depressed. But you can do some things to make them better. And if that sounds daunting, remember that you don’t have to do it alone.

For example, one of the most common issues that people with fibromyalgia suffer from is that they don’t feel like their medications are working. And the fact is that sometimes, they don’t. There are few drugs designed specifically to treat fibromyalgia, which means that doctors often prescribe drugs for other conditions like depression to treat the condition. And these work differently for different people.

If the drugs you’re taking aren’t working, tell your doctor. It may be as simple as trying new medications until you find one that works for you.

But it might also be a good idea to try another doctor. Treating fibromyalgia sometimes requires a doctor who specializes in the condition, so consider researching doctors in your area who have experience treating fibromyalgia. Or you might try a chronic pain clinic, where the healthcare professionals on staff may have more experience treating chronic pain conditions like fibromyalgia.

Of course, there are times when the physical symptoms of fibromyalgia aren’t the only problems you’re facing. Fibromyalgia can take a toll on your relationships with friends or loved ones, and it can make it hard to work, which leads to a host of financial stresses.

Luckily, there are professionals who specialize in dealing with these problems as well. If you are worried that your relationship with a spouse is suffering, consider seeing a marriage counselor. They can help you work through some of the issues that you might be facing.

If managing your responsibilities at work or trying to find a job is getting you down, consider seeing an occupational therapist. Occupational therapists work with people who have chronic health conditions to find jobs that will work around their health issues and provide therapies that can help them rejoin the workforce.

Often, one of the best ways to manage depression caused by fibromyalgia is exercise. Of course, if you’ve had fibromyalgia for a while, you’re probably tired of hearing this advice. After all, it’s hard to exercise when you’re constantly tired and in pain and the effort can make your symptoms worse.

That’s completely understandable. But there’s a lot of evidence that even light exercise can significantly improve fibromyalgia symptoms and mental health. Start slow, with a short walk. Build up to more advanced forms of exercise. Or try another, low impact alternative like yoga.

Again, consider working with a professional therapist who has experience helping people with chronic conditions exercise and develop a healthy diet. They’ll be able to give you advice on your situation.

A large part of managing your mental health when you have fibromyalgia is seeking out the people who can help you and learn to deal with the people who just make your life worse.

Most of all, you’re struggling with depression or thoughts of suicide, talk to a mental health professional. It’s not a situation you should try to manage on your own.

Start with small steps and do the best you can. By taking charge of your mental health, you can improve your overall quality of life.

 

 

 

The preceding article is from FibromyalgiaTreating.com and posted here for sharing purposes only. No copyright infringement is intended.

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