Posts Tagged Fibromyalgia Awareness

10 of the Worst Things Said to People with Fibromyalgia

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1. People with fibromyalgia are just lazy

This is a killer, and the vast majority of our respondents mentioned being told they just “don’t want to do” stuff.

Some responses:

That I’m lazy I play up to my fibro and its all in your head and you can do more than you think you can!

Lazy, everybody hurts. Everyone has arthritis. You need to exercise, you need to walk. Blah blah blah.

My 17-year-old son broke my heart, he said I wasn’t sick I was lazy. Even though he hears me cry in my sleep in pain through two walls. I’m 53 and have to use a walker.

They have told me I was just lazy that I got up and moved around I would feel better or its all in my head if I would find something to keep my mind occupied I would be ok.

“Child protection services took my 5 children. On court records, the judge overruled me and my doctors and expert witness and said that it wasn’t a disease and I was just lazy.

Lazy, a waste of space, nothing wrong with me, so why would I want to leech off the government with wanting to get disability?

My ex husband told me I was a lazy sponging c$&t that I wasn’t contributing financially or around the house enough after much abuse I found out he was cheating and he left.

As you can see, this is very common and hurtful. In fact, people email Fibromyalgia Treating just spew this kind of hate. For example, this person got themselves so worked up they finished in all-caps:

you weak individuals are just looking for a quick fix, a simple cure, there isn’t one, very over it (sic) and care for yourself, lol no medication is going to help ANYONE with fibro you have to actually get off your ass to help yourself. Why not post TRUTH like that? Stop peddling trash. YOU ARE MISLEADING. I UNFOLLOWED YOUR TRASHY BULLSHIT PAGE AND I’LL KEEP REPORTING THOSE POSTS AS MISLEADING. HAVE NICE DAY. (sic)

We did have a nice day, and banned this person, too. But this person’s comment touches on our next type of hateful comment.

2. Fibromyalgia doesn’t exist

A classic that everyone’s heard, and it’s so hard because that maybe we should have made it the number one hateful statement because it’s the basis of all stigma against people with fibromyalgia.

I saw a doctor for a different medical condition. Once he saw Fibromyalgia listed on my medical chart he made a point to tell me “I don’t believe Fibromyalgia is a real thing. The doctors that do these days should have their license reviewed. It simply does not exist. What meds are you taking for it?

It’s an awful disease. I put my brave face on 24/7. No one can see our pain and suffering, so they question if it’s real or we’re just attention seeking. It’s much easier to pretend I’m ok, than it is to explain why I’m not.

3. It’s all in your head

This is closely related to the “doesn’t exist,” but it’s a much more explicit way to gaslight fibro sufferers.

That i’m lazy i play up to my fibro and its all in your head and you can do more than you think you can! And people have said i don’t want to hear it and we all have problems. They should step in my shoes for a day !!

They’ll say things like “you ain’t sick it’s all in your head” or “it doesn’t look like you’re in pain” makes your heart ache with tears that nobody will ever understand you.

They have told me i was just lazy that i got up and moved around i would feel better or its all in my head if i would find something to keep my mind occupied i would be ok.

As you can see, people are cruel and they like to use more than one category of hateful comment.

4. You Don’t Look Sick

Since fibromyalgia is an invisible illness, people who have it often don’t “look” sick, whatever that means. It’s also one of the most frustrating things a fibro warrior can her.

You don’t look sick. Look at you, you’re a runner. No way it’s that bad. Suck it up…. I’ve lost 2 very good paying jobs because of my faked illness.

I went to a concert at a stadium to be told I don’t look disabled and that fibromyalgia is just a figment of my imagination to scam the tax payers, needless to say we left the concert and headed straight home, wrote a letter of complaint but never even received an acknowledgement from them.

This women came to the car and said you can’t park There? On showing her my disability disk she said neither of you look disabled and it was disgusting that we were able to have a car???

5. God is punishing you for your sins

These people take victim-blaming to the next level by making illness a judgment on a person’s moral character. It’s shameful.

My uncle, who is a preacher, told me I was being punished by God for all of the wild things I have done & my family wonders why I don’t believe.

The rudest thing I have been told is GOD is punishing me for my sins. I know a lot of good Christians that died of cancer…I don’t think they were punished either. How dare they say this to me?

6. You’re just trying to get drugs

This is also a sad side-effect of the opioid crisis in the United States. We assume anyone in pain is just trying to get pills.

I’m lazy, good for nothing, will do nothing with my life, I need to do more, im a pill popper (I have a hard time taking meds unless I have too) and my favourite is I’m faking everything!

I’m not sure but to day I was left feeling like a addict over Tylenol. I am 54 years old when do you stop defending yourself. It made me cry.

I work with my mom and I was having an awful pain day. Around lunch time I had finally had it and I couldn’t hold back the tears. I was crying and crying as she spent 10 minutes telling me to suck it up and go back to work. I told her I needed to go home and take my meds to which she said ‘I think you’re just addicted to your meds.’

I was called a drug addict at one point because I was on so many medications. I felt like I might as well have been shooting up with the way people looked at me.”

I’ve had a receptionist look at my file and count my meds telling me I should still have plenty left, would never greet me, and I finally told my Dr after months and he got so upset with her and told me to tell him those things straight away, she has no right to be doing that. He sorted her out and also the pharmacist that would comment on my meds and how much I’m taking, without knowing my many medical issues.

7. You just need to exercise and lose some weight

This is similar to the “You’re lazy” and “it’s all in your head” with the added bonus of weight-shaming. It’s despicable. Here’s what our readers shared:

I have had to deal with uneducated Dr.s who were insensitive however , saying things like, Well, if you would lose some weight and get out and exercise you would be ok and this condition isn’t really a condition!

Just exercise and lose some weight and you’ll feel better. Or you sound happy to have that diagnosis, are you just looking for excuses.

“Well maybe if you lost weight and exercised you’d feel better.. THANKS SIS.. love you too.. maybe if she knew that the majority of the over 20 pills I take daily cause weight gain and bloating.”

Eye rolling while telling me ‘oh I don’t believe in all that crap! If you just exercise and diet you will start feeling better. Lose some weight and you’ll feel better. I would be in pain too if I just laid around all day.’

 

Lose weight, you are too big, that’s why you are in pain, you carry too much weight on your body.’ ‘You need to move around and exercise.’ I’ve been told this many times.’

Family member told me to just suck it up. You don’t need your Lyrica . You don’t look sick you’re just over weight…… U dont go out enough….. It’s all in your head……

8. You just want attention

People love to break out their arm-chair psychiatry degrees for this one. Munchhausen Syndrome is a real thing, but so is fibromyalgia. People are so rude.

‘Attention seeking’
‘It’s in your head’
‘It can’t be that bad’
‘Stop being lazy’
‘You need to go out and exercise more’
‘I did this with that and that’s worse’
‘Are you sure you’re not putting on?’
‘You’re always sick’

Was in hospital with the worst pain flare up, had so many tests and they all came back normal!….so the dr said to my dad does your daughter like being in hospital??…must of thought the blue curtain around my bed was soundproof.

You just want attention. There’s nothing wrong with you. You’re a hypochondriac. You just need some exercise and to lose weight. These are just some of the things I hear!

9. That’s all you talk about

This is a big one. People are afraid to talk because they’re met with eye-rolls or worse. Here’s a tip: If you don’t want to know how someone is doing, don’t ask.

I can’t talk about how I feel….I always get the same comment…you always say your not feeling well…like it’s something I’m making up.Each day is different and can be a struggle.. It’s hard when people around you don’t understand how your feeling and don’t want to hear it and don’t really care.

10. Oh yeah, that sucks, but it’s not as bad as this

There are some people who can’t just empathize. They have to outdo your pain by telling you how bad they’re hurting.

A friend of a (friend), said, “O I have that too, but that’s nothing compared to ” and that’s where they say their condition is worse than mine.

 

The preceding article is from FibromyalgiaTreating.com and posted here for sharing purposes only. No copyright infringement is intended.

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Fibromyalgia and Donating Blood

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Donating blood is an important way to give back to your community. If you take the time to donate your blood, you can help save a life. In fact, the American Red Cross estimates that about three lives can be saved when you donate blood. Blood is in constant need. Within the United States blood is needed around every two seconds, which is why it is important to continuously donate.

The following article will address blood donation and how it can be both advantageous and disadvantageous.

Advantages of Donating Blood

Donating blood is not only beneficial to recipients, but it also has several advantages for the donator. Below we will examine the several ways blood donations can help reduce your blood pressure, benefit your overall physical health, and help improve your mental health.

Reduce Blood Pressure

Donating blood has been found to help reduce blood pressure. Additionally, donating blood has been found to help lower the risk of heart disease and heart attacks if you continuously making blood donations. There are lower levels of total cholesterol and low-density lipoprotein cholesterol in donators, which protects against cardiovascular disease.

Physical Health

When you go to donate your blood you are required to go through a health screening. A health professional reviews things like your blood pressure, body temperature, hemoglobin levels, and pulse. They will also need to test your blood for any diseases. This is a free health checkup, which can help you manage your physical health more efficiently.

Mental Health

Donating blood can help improve your overall mental well-being. By acting selflessly and donating blood to help save a life you can feel a sense of belonging and purpose. It can help reduce negative feelings and make you feel less isolated.

Disadvantages of Donating Blood

First, let us start by discussing the disadvantages of donating blood. Donating is a safe process and involves a trusted procedure. Blood donation has more advantages than disadvantages, but for this article, we are going to examine the few reasons why donating blood can be difficult for some people. Blood donation can be time-consuming and can take up to at least an hour for the entire process. However, the actual blood donation happens within ten minutes. Also, the process of donating blood can leave you with bruising, pain, weakness, continued bleeding, or dizziness and nausea. Below we will go into detail about these disadvantages.

Bruising

It is quite common to experience bruising when you donate blood. When the needle is inserted into one of your veins to collect blood it tends to leave the area a little bruised. Bruises vary in color and size. Yellow, blue, or even purple bruises are nothing to worry about. In fact, you should not be at all concerned if you get bruises after donating blood. You can easily treat the bruises by placing an ice pack on the bruised area.

Pain

Pain may arise when the needle is inserted into your arm. The process of taking blood is not painful, but the needle can cause discomfort for some people. It is also possible to feel a bit sore after donating blood, especially if you experience bruising.

Weakness

After donating blood it is possible to feel weak. Your arm is more likely to experience weakness because that is the site where blood is drawn. It is important to not exercise or do any intense physical activity for a few hours after you donate blood.

Continued Bleeding

If you experience continued bleeding after removing the needle, put pressure on the site that is bleeding. Then, keep your arm above your heart for a few minutes before releasing the pressure. The pressure should slow down the bleeding. This is why you are told to keep the bandage and dressing around your arm for a few hours so that way the bleeding will stop. However, if you notice that your bleeding does not stop after applying pressure, you will need to speak to your doctor.

Dizziness and Nausea

Once completing your blood donation, you need to sit in an observation area for about fifteen minutes. During this time, you can drink water or juice, rest, and eat a small snack. This allows your body to recuperate and helps prevent any dizziness, lightheadedness, or nausea. Mild versions of dizziness, lightheadedness, or nausea can still occur. If you experience these side effects long after blood donation, call and speak to your blood donation center.

If you are interested in donating your blood, contact your local blood donation center to find out the requirements for blood donations.

 

 

The preceding article is from FibromyalgiaTreating.com and posted here for sharing purposes only. No copyright infringement is intended.

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What’s the Worst Case of Fibromyalgia?

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Have you ever wondered what the absolute worst case of fibromyalgia would be? After all, it’s a disease that affects everyone differently. And it makes sense that some people are affected by it more severely than others.

So what would be the worst case of fibromyalgia? How severely could it affect your life? And what could you do to treat it?

What Is Fibromyalgia?

Fibromyalgia is a disease that is not well understood. Essentially, it creates a general feeling of pain and fatigue around your body. There are a number of possible explanations for what causes fibromyalgia, but no one is sure what the right one is.

Some doctors believe that fibromyalgia is an autoimmune disease. That means that the body’s immune system begins to attack the healthy cells which make them inflamed and tender and causes aching in certain points around your body.

While no one knows exactly what the cause of fibromyalgia is, it’s a debilitating illness that affects people in a lot of different ways.

What Does It Do To Your Body?

Fibromyalgia causes a number of very different symptoms. And it varies so much that no two people have the exact same reaction to fibromyalgia. However, the most common system, and one that all fibromyalgia sufferers have, is chronic pain.

The pain is located along 18 specific points of the body. These are usually in your joints on both sides of the body and the level of pain can be different for different people. The level of pain can also change throughout the day.

And another common symptom for people with fibromyalgia is fatigue. Fibromyalgia sufferers often find that they can’t sleep very well, and when they do, they don’t wake up feeling refreshed the next day. As a result, people with fibromyalgia end up feeling something that is usually called a “fibro-fog.”

Fibro-fog is the name for a sort of mental cloudiness that comes with fibromyalgia. It usually presents as short-term memory loss, or trouble focusing on tasks.

Finally, fibromyalgia can cause some slightly more unusual symptoms. People with fibromyalgia often have irritable bowel syndrome, and gastrointestinal problems are very common among people who have fibromyalgia. And there are other conditions like constant itching which sometimes affect fibromyalgia sufferers.

What’s The Worst Case Of Fibromyalgia?

So if you’ve been diagnosed, you’re probably wondering how bad your fibromyalgia might actually get (what the worst case of fibromyalgia might be, basically).

Well, the good news is that your fibromyalgia won’t kill you. But fibromyalgia can still severely limit your quality of life.

Fibromyalgia affects many people by causing them to feel a constant feeling of pain and fatigue. So for people who have fibromyalgia, daily life can get very difficult.And the stories of people who have suffered from the illness for decades are heartbreaking.

Generally, fibromyalgia begins in its early stages with some warning signs. These are things like chronic fatigue and mysterious pain in eighteen points around the body. This pain is what causes most fibromyalgia patients to go to the doctor for a diagnosis. Though, if you have fibromyalgia, you probably already know how that goes.

Fibromyalgia then progresses into the chronic stage, where the pain and fatigue are constant. This is what most fibromyalgia patients live with every day. And though there are treatments, not all are effective. And everyone’s fibromyalgia seems to respond differently to different drugs.

Even the most up to date and cutting edge treatments might be completely ineffective for a lot of people. And this kind of treatment-resistant condition is the worst case of fibromyalgia since it is unresponsive to treatment and can often seem to get worse.

This is a tricky subject to discuss with any certainty, however. While most doctors will say that fibromyalgia isn’t a progressive disease for most people, some sufferers definitely report that their disease gets worse over time.

Can Fibromyalgia Make You Disabled?

So if you’ve just been diagnosed with fibromyalgia, there’s a chance that your pain and fatigue levels might begin to plateau and stay roughly where they are, though some days will be worse than others.

But in the worst case of fibromyalgia, the disease will get more painful and debilitating over time.

For people whose situation is the worst case of fibromyalgia, they will likely suffer their entire lives with constant, and unmanageable pain. This leads to serious problems in their daily lives.

Often, they lose their jobs due to the fact that they are effectively disabled. The constant pain and fatigue and the mental cloudiness, or fibro fog, makes working impossible.

And for people with extremely severe fibromyalgia, even getting out of bed is close to impossible. They require heavy doses of painkillers to even walk. And it takes them heavy doses of sleeping medication to get anything close to a full night’s sleep.

For those people who have the worst case of fibromyalgia, every day is a physical struggle. But it can be an emotionally struggle as well.

Can The Worst Case Of Fibromyalgia Affect Your Relationships?

Having severe fibromyalgia makes it difficult to maintain relationships with friends and family. People who used to enjoy your company sometimes drift away because your chronic pain and lack of mobility become tough for them to deal with. While that isn’t even remotely fair, it’s often how people are.

So in the worst case of fibromyalgia, expect to lose some of the friends you had who aren’t really friends. But the good side is that you will see who truly cares about you because they will stick around.

In addition, dealing with such a severely limited quality of life is extremely difficult emotionally. The constant pain can make it feel like life isn’t worth living. And suicide is tragically common among people with severe fibromyalgia.

It’s important to get help if you feel like you might be considering taking your own life. Suicide is never a good solution, and the saying that “it doesn’t end the pain, it only spreads it to the people who care about you,” is very true.

Fibromyalgia is a horrific disease to live with. And it takes a special kind of courage to endure the worst case of fibromyalgia.

 

 

The preceding article is from FibromyalgiaTreating.com and posted here for sharing purposes only. No copyright infringement is intended.

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10 of the Worst Things Said to People with Fibromyalgia

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1. People with fibromyalgia are just lazy

This is a killer, and the vast majority of our respondents mentioned being told they just “don’t want to do” stuff.

Some responses:

That i’m lazy i play up to my fibro and its all in your head and you can do more than you think you can!

Lazy, everybody hurts. Everyone has arthritis. You need to exercise, you need to walk. Blah blah blah.

My 17-year-old son broke my heart, he said I wasn’t sick I was lazy. Even though he hears me cry in my sleep in pain threw two walls. I’m 53 and have to use a walker.

They have told me I was just lazy that I got up and moved around I would feel better or its all in my head if I would find something to keep my mind occupied I would be ok.

“Child protection services took my 5 children. On court records, the judge overruled me and my doctors and expert witness and said that it wasn’t a disease and I was just lazy.

Lazy, a waste of space, nothing wrong with me, so why would I want to leech off the government with wanting to get disability?

My ex husband told me I was a lazy sponging c$&t that I wasn’t contributing financially or around the house enough after much abuse I found out he was cheating and he left.

As you can see, this is very common and hurtful. In fact, people email Fibromyalgia Treating just spew this kind of hate. For example, this person got themselves so worked up they finished in all-caps:

you weak individuals are just looking for a quick fix, a simple cure, there isn’t one, very over it (sic) and care for yourself, lol no medication is going to help ANYONE with fibro you have to actually get off your ass to help yourself. Why not post TRUTH like that? Stop peddling trash. YOU ARE MISLEADING. I UNFOLLOWED YOUR TRASHY BULLSHIT PAGE AND I’LL KEEP REPORTING THOSE POSTS AS MISLEADING. HAVE NICE DAY. (sic)

We did have a nice day, and banned this person, too. But this person’s comment touches on our next type of hateful comment.

2. Fibromyalgia doesn’t exist

A classic that everyone’s heard, and it’s so hard because that maybe we should have made it the number one hateful statement because it’s the basis of all stigma against people with fibromyalgia.

I saw a doctor for a different medical condition. Once he saw Fibromyalgia listed on my medical chart he made a point to tell me “I don’t believe Fibromyalgia is a real thing. The doctors that do these days should have their license reviewed. It simply does not exist. What meds are you taking for it?

It’s an awful disease. I put my brave face on 24/7. No one can see our pain and suffering, so they question if it’s real or we’re just attention seeking. It’s much easier to pretend I’m ok, than it is to explain why I’m not.

3. It’s all in your head

This is closely related to the “doesn’t exist,” but it’s a much more explicit way to gaslight fibro sufferers.

That i’m lazy i play up to my fibro and its all in your head and you can do more than you think you can! And people have said i don’t want to hear it and we all have problems. They should step in my shoes for a day !!

They’ll say things like “you ain’t sick it’s all in your head” or “it doesn’t look like you’re in pain” makes your heart ache with tears that nobody will ever understand you.

They have told me i was just lazy that i got up and moved around i would feel better or its all in my head if i would find something to keep my mind occupied i would be ok.

As you can see, people are cruel and they like to use more than one category of hateful comment.

4. You Don’t Look Sick

Since fibromyalgia is an invisible illness, people who have it often don’t “look” sick, whatever that means. It’s also one of the most frustrating things a fibro warrior can her.

You don’t look sick. Look at you, you’re a runner. No way it’s that bad. Suck it up…. I’ve lost 2 very good paying jobs because of my faked illness.

I went to a concert at a stadium to be told I don’t look disabled and that fibromyalgia is just a figment of my imagination to scam the tax payers, needless to say we left the concert and headed straight home, wrote a letter of complaint but never even received an acknowledgement from them.

This women came to the car and said you can’t park There? On showing her my disability disk she said neither of you look disabled and it was disgusting that we were able to have a car???

5. God is punishing you for your sins

These people take victim-blaming to the next level by making illness a judgment on a person’s moral character. It’s shameful.

My uncle, who is a preacher, told me I was being punished by God for all of the wild things I have done & my family wonders why I don’t believe.

The rudest thing I have been told is GOD is punishing me for my sins. I know a lot of good Christians that died of cancer…I don’t think they were punished either. How dare they say this to me?

6. You’re just trying to get drugs

This is also a sad side-effect of the opioid crisis in the United States. We assume anyone in pain is just trying to get pills.

I’m lazy, good for nothing, will do nothing with my life, I need to do more, im a pill popper (I have a hard time taking meds unless I have too) and my favourite is I’m faking everything!

I’m not sure but to day I was left feeling like a addict over Tylenol. I am 54 years old when do you stop defending yourself. It made me cry.

I work with my mom and I was having an awful pain day. Around lunch time I had finally had it and I couldn’t hold back the tears. I was crying and crying as she spent 10 minutes telling me to suck it up and go back to work. I told her I needed to go home and take my meds to which she said ‘I think you’re just addicted to your meds.’

I was called a drug addict at one point because I was on so many medications. I felt like I might as well have been shooting up with the way people looked at me.”

I’ve had a receptionist look at my file and count my meds telling me I should still have plenty left, would never greet me, and I finally told my Dr after months and he got so upset with her and told me to tell him those things straight away, she has no right to be doing that. He sorted her out and also the pharmacist that would comment on my meds and how much I’m taking, without knowing my many medical issues.

7. You just need to exercise and lose some weight

This is similar to the “You’re lazy” and “it’s all in your head” with the added bonus of weight-shaming. It’s despicable. Here’s what our readers shared:

I have had to deal with uneducated Dr.s who were insensitive however , saying things like, Well, if you would lose some weight and get out and exercise you would be ok and this condition isn’t really a condition!

Just exercise and lose some weight and you’ll feel better. Or you sound happy to have that diagnosis, are you just looking for excuses.

“Well maybe if you lost weight and exercised you’d feel better.. THANKS SIS.. love you too.. maybe if she knew that the majority of the over 20 pills I take daily cause weight gain and bloating.”

Eye rolling while telling me ‘oh I don’t believe in all that crap! If you just exercise and diet you will start feeling better. Lose some weight and you’ll feel better. I would be in pain too if I just laid around all day.’

 

Lose weight, you are too big, that’s why you are in pain, you carry too much weight on your body.’ ‘You need to move around and exercise.’ I’ve been told this many times.’

Family member told me to just suck it up. You don’t need your Lyrica . You don’t look sick you’re just over weight…… U dont go out enough….. It’s all in your head……

8. You just want attention

People love to break out their arm-chair psychiatry degrees for this one. Munchausen Syndrome is a real thing, but so is fibromyalgia. People are so rude.

‘Attention seeking’
‘It’s in your head’
‘It can’t be that bad’
‘Stop being lazy’
‘You need to go out and exercise more’
‘I did this with that and that’s worse’
‘Are you sure you’re not putting on?’
‘You’re always sick’

Was in hospital with the worst pain flare up, had so many tests and they all came back normal!….so the dr said to my dad does your daughter like being in hospital??…must of thought the blue curtain around my bed was soundproof.

You just want attention. There’s nothing wrong with you. You’re a hypochondriac. You just need some exercise and to lose weight. These are just some of the things I hear!

9. That’s all you talk about

This is a big one. People are afraid to talk because they’re met with eye-rolls or worse. Here’s a tip: If you don’t want to know how someone is doing, don’t ask.

I can’t talk about how I feel….I always get the same comment…you always say your not feeling well…like it’s something I’m making up.Each day is different and can be a struggle.. It’s hard when people around you don’t understand how your feeling and don’t want to hear it and don’t really care.

10. Oh yeah, that sucks, but it’s not as bad as this

There are some people who can’t just empathize. They have to outdo your pain by telling you how bad they’re hurting.

A friend of a (friend), said, “O I have that too, but that’s nothing compared to ” and that’s where they say their condition is worse than mine.

 

The preceding article is from FibromyalgiaTreating.com and posted here for sharing purposes only. No copyright infringement is intended.

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